Tuesday, March 29, 2011

C’est la vie – Ad absurdum

He who would learn to fly one day must first learn to stand and walk and run and climb and dance; one cannot fly into flying-Friedrich Nietzsche

Last Tuesday Skiffy was released from physical therapy to walk without her crutches for longer distances. It is a beautiful thing to see her walking again. It is also terrifying. I spend my days worried about her every step. The old cliché that when you have a child your heart forever walks outside your body? So totally true.

I worry that she will fall and dislodge the pins in her hip somehow. I worry that she will push herself too fast and won’t heal properly; and she will because she is strong and stubborn like that. I worry that she will have long-term complications with scary names like avascular necrosis; and that is still a possibility. I worry that she will hurt. All of that worry is part and parcel to being a mom.

All of that worry about Skiffy’s hip is misplaced it seems. She twisted her arm rough-housing in school last week and hid the injury for several days. Even when she revealed that her wrist was injured, it didn’t seem to warrant an x-ray.  


Tonight, the doctor in the urgent care center put a fiberglass splint on her wrist and referred us to ortho first thing in the morning.

To be continued...

Sunday, March 27, 2011

Asperger's, to a Family is...

An intense sense of wonder
A destructive force
Shaping an individual
Shaping a family
Alienating a son
Holding a family hostage
Seeking joy in a passion
Being ruled by an obsession
Stretching a mother's heart
Tearing emotions to shreds
Climbing mountains and
Sleeping in cold valleys
Watching a bird spread his wings and
Holding the safety net until your arms are numb
Seeing the world through different eyes
Feeling intense frustration
Overcoming obstacles
Tolerating exhaustion
Persevering on eggs
Avoiding red dyes
Staying organized
Limiting spontaneity
A test of patience
An act of love